When Connor was born the doctor gave us a very large article that had been marked with a highlighter over several paragraphs. Dr. Rob has been our pediatrician from the start...when Connor was first diagnosed with OI in utero. When Connor was born and we were given a different diagnosis, Dr. Rob gave us this article and he highlighted all the major points that needed to be considered in Connor's first few months of life. It is called "Health Supervision For Children with Achondroplasia". I use to read it all day every day when Connor was first born but now I rarely look it up. As part of the LPBC mandate of support and awareness, we try and give information out to new parents of LP's, Doctors, infant development workers, grandparents etc. and so with this in mind, I'm having our printer print up some copies to give out as part of a package. You can find it easily by googling it.
Sometimes as parent of children with differences we focus on the things we need to fix or get checked or monitored. We get lost in the medical world and don't live in the real world of the moment. Today our LPA friend Julie posted a link about a mom who's daughter fell off a swing and hit her head and now she's in very serious condition. She's Connor's age. With all that's going on with Connor's arm and trying to find answers, I need to remember that he's just Connor...an amazing, smart, funny, handsome, six year old boy!
Sometimes as parent of children with differences we focus on the things we need to fix or get checked or monitored. We get lost in the medical world and don't live in the real world of the moment. Today our LPA friend Julie posted a link about a mom who's daughter fell off a swing and hit her head and now she's in very serious condition. She's Connor's age. With all that's going on with Connor's arm and trying to find answers, I need to remember that he's just Connor...an amazing, smart, funny, handsome, six year old boy!
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