The monkey chased the weasel, the monkey thought it was all in good fun...
But not really. That is what I feel like we are doing with Mr. C and this whole arm thing. I stood in the the exam room at the pediatricians office and almost cried ( I say almost...but there were tears in my eyes). I feel like there is a huge weight on my shoulders that I can't shake. I'm scared for my son. Weakness in his arm leads to issues with other things that we were just starting to enjoy ( Mr. C was just being able to get his pants up and down at school to go to the washroom on his own). Playing basketball, baseball, writing, etc etc etc etc.
It's scary to not have medical answers. To not have any Doctor be able to explain why my son is losing feeling in his arm, why it hurts, why he can't rotate it, why he's losing muscle mass. There has to be some reason...sigh ( Ortho called and we have an appointment next week)...
It is a day to day struggle not to let the weight and the worry drag you under. I try and think of all the things he can do...and try not to worry about every little thing. When he says his head hurts or his neck is sore, I go to that place. That place where the medical issues are cataloged in my mind. That 45 page document that I have read back to back and have memorized. Should I panic? Or is this something he can shake off...can I shake it off? There are lots of new POLP out there that are just coming to terms with the abundant medical information/test/doctors that becomes a part of our lives. I want them to realize it becomes less of a weight and worry...but there are time (like now) that is can still pop up and become a challenge. One foot in front of the other...that's what we'll do until we have some answers. We'll question, challenge and advocate for what Mr. C needs. We'll see doctor after doctor and get opinion after opinion until we get what we are searching for. Having one Doctor that we trust is important and I am very thankful for that. So to all those newbie's...chin up and hang in there.
But not really. That is what I feel like we are doing with Mr. C and this whole arm thing. I stood in the the exam room at the pediatricians office and almost cried ( I say almost...but there were tears in my eyes). I feel like there is a huge weight on my shoulders that I can't shake. I'm scared for my son. Weakness in his arm leads to issues with other things that we were just starting to enjoy ( Mr. C was just being able to get his pants up and down at school to go to the washroom on his own). Playing basketball, baseball, writing, etc etc etc etc.
It's scary to not have medical answers. To not have any Doctor be able to explain why my son is losing feeling in his arm, why it hurts, why he can't rotate it, why he's losing muscle mass. There has to be some reason...sigh ( Ortho called and we have an appointment next week)...
It is a day to day struggle not to let the weight and the worry drag you under. I try and think of all the things he can do...and try not to worry about every little thing. When he says his head hurts or his neck is sore, I go to that place. That place where the medical issues are cataloged in my mind. That 45 page document that I have read back to back and have memorized. Should I panic? Or is this something he can shake off...can I shake it off? There are lots of new POLP out there that are just coming to terms with the abundant medical information/test/doctors that becomes a part of our lives. I want them to realize it becomes less of a weight and worry...but there are time (like now) that is can still pop up and become a challenge. One foot in front of the other...that's what we'll do until we have some answers. We'll question, challenge and advocate for what Mr. C needs. We'll see doctor after doctor and get opinion after opinion until we get what we are searching for. Having one Doctor that we trust is important and I am very thankful for that. So to all those newbie's...chin up and hang in there.
Comments
I will keep your family in my prayers. It must be so hard to have him in discomfort and pain and have no information as to why.You are a great mom and a wonderful woman. C is so blessed to have you as his mom and advocate. Love you.